Someone Special

January 17, 2012 in Personal

The little boy, so innocent and full of life. He will be two years old on January 18, 2012. I have to admit that I’m quite impressed with his abilities so far and the fact that he has learned sign language. We, as humans, are so quick to judge others that aren’t like us. The fact of being “normal” in their eyes has been debated on epic levels. It has become so bothersome to others that they have brought it into political discussions, church sermons, and scientific philosophies. I haven’t always had my eyes open to it and when I was much younger, I thought of it as something funny. Here I am years later writing about how wrong I was; I’ve learned more about this in the last two years than throughout my entire life. I would move heaven and earth to help this toddler, not because of who or what he is, but because he is amazing and worth protecting. My children speak of him on a daily basis, consistently asking, “When am I going to see him again?” or  “Should we buy this for him?” It’s amazing that at so young an age someone could create such an impact on my family and me. There will be many cynics in his life and from the day he was born to many hospital visits to now, he has proven them all wrong.

I remember getting the call from my brother saying that his son would be born with disabilities and how he was torn on the decision of raising such a child. So much ran through my head at the time and I couldn’t imagine what it would be like for him and his wonderful wife. Having two healthy, beautiful girls, I couldn’t fathom what steps he would have to take to ensure safety for this child throughout his life. I won’t elaborate on many details of the pregnancy or anything else because it's not my place to discuss it. I am just trying to educate those who judge because they don't understand. To gain leverage in a political forum or to feel the need to consistently bring up the issue with some moronic solution as to why “God” did this is beyond repulsive. Anyway, back to this savior. I feel that he has brought my family closer on every level and it makes us appreciate each other daily. When my five year old sees someone like him, she immediately says, “Daddy, look he’s special too!” with no small amount of emotion. She is genuinely excited that she has met someone else like him. She’s not judging, she’s not looking down on him, she’s not making fun and she’s not being critical. She is seeing him for who he is: a wonderful human being just wanting to be given a chance.

I have told my story and hope that someone understands my point. If I can inform anyone, then I feel good. This tale isn’t one of pity or sadness but rather of hope and love. I’m honored and proud to say that this two year old to whom I am referring is my nephew, Nico, who has Down’s Syndrome. I have found that this gift isn’t a disability but one that should be embraced. If we as humans had as much heart as these wonderful people, then we wouldn’t consistently be trying to one up each other. They’ve become actors, role models, valuable employees, and caring individuals. They don’t go throughout their day trying to deceive, and they would never say that a person's disability is the wrath of God. I just want to thank those that have taken the time to read this. I love you, Nico.

  • http://wordsmoker.com/help/members-3/kausaustralisandsaturn/ Worthless Emo

    Nuerodiversity will be a messy movement in our lifetime. My law professor was explaining in adoption law the issues of disabilities, and in some strange urge she outted herself. She had been in the market for special needs children in adopting her son and daughter whom have aspergers and adhd respectively. There exists an entire rational choice catagory for parents, which simply in reaching that choice–existed so much inspiration that blew me away. There are people, as I have witnessed, who want to raise special children. She’s not a wack job either, telling us stories of the challenges and frequent frustrations involved. Its a journey, not just a diagnosis.

    Thank you for sharing this with us. Love the picture.

  • http://wordsmoker.com/help/members-3/fracturedacetabulum/ FracturedAcetabulum

    Happy Birthday Nico.

    Well said, Pish. And may we all have the wisdom and innocence of your five year old. Judgey eyes are a learned behavior just as non-judgey eyes are. Obviously you’ve taught that kiddo well. Kudos.

    Raising a kiddo with challenges and opportunities is something that those who haven’t done truly can’t understand. Yet those who haven’t always feel free to give their undeserved, unsolicited opinion.

  • http://wordsmoker.com/help/members-3/militantrubberducky/ MilitantRubberDucky

    This was really touching, Pish. I can’t imagine being faced with the challenge of raising any child, let alone one who is developmentally disabled. My heart just breaks for all the troubles and bullshit they have to put up with in their lives, and their outlook on life is incredibly humbling.

    • Hayley Goleniowska

      Our kids teach us so very much :)

  • http://wordsmoker.com/help/members-3/militantrubberducky/ MilitantRubberDucky

    Also, at the risk of damning my eternal soul, those longer chromosomes look like gummy worms.

  • http://wordsmoker.com/help/members-3/chillbearlatrigue/ Chillbear Latrigue

    In 2003, I was touring Germany with my martial arts group. We had hit seven different cities on the final day of the circuit. By the last event, we were all dead tired, but we always tried to make a good showing no matter where we went.

    One of the last parts of the final hour of that long day was a belt-testing. Two of the students at the school were Down Syndrome teens. I stood by and watched them perform the requisite elements of the test. Their performances were less than impressive. I didn’t believe that they were poor students; I think that they had been moved along too quickly—maybe because they had special needs. The master who was overseeing the testing told them in the nicest possible way that they were not ready for the next level.

    I was pretty shocked and saddened by the result. Seriously? He’s failing them? Everyone would understand if he lowered the standard just a bit. After all, it’s only a belt.

    He didn’t tell them that they couldn’t ever get to the next level. “Just not today. You’re not ready yet. I hope you don’t quit. I hope you keep working hard.”

    I saw the two students nod their heads in understanding. No tears. No looks of disappointment. No embarrassment. T

    I found one of them after and I told him in English that I hoped that he would keep training. He responded to me (in English), “I will. It’s all right. I like martial arts.” He then shook my hand and gave me a hug.

    His quiet determination was impressive to me. Without knowing him well, I interpreted his reaction to mean that he wasn’t looking for any special considerations; he just wanted his place at the table.

    Five days later I walked under an iron sign into the remains of a camp where, sixty years before, remarkable young men like him would have been executed in a grotesque fashion for their condition.

    I’d like to say that I learned something from my experiences, but I didn’t. I just walked around in the cold, passing barracks, gas chambers, firing squad walls, and gallows, feeling sad, hopeful, wary, angry, and determined.

  • Hayley Goleniowska

    Thank you for this lovely post. I shall feature in my SEN round-up for Britmums this month. Hop over and say hi at http://www.downssideup.com